TWO local politicians volunteered to have their lungs tested in support of Cystic Fibrosis.
David Simpson MP and John McCallister MLA attended an event organised by the Cystic Fibrosis Trust last month to highlight the impact of such a devastating disease.
Cystic Fibrosis is a progressive disease with the average age of death for a person with CF of around 29 years old. Despite this, because of advances in treatment and access to clinical expertise, many people with CF are living longer than ever before.
The average lung capacity for an adult with Cystic Fibrosis is just 65.1 per cent compared to someone without Cystic Fibrosis that would achieve results of 80 per cent or more.
Mr Simpson achieved 109 per cent on his spirometry test which is well above average.
Both David and John said, “I am delighted to attend the event to show my support for the Cystic Fibrosis Trust. Having my lung function tested has shown me how much more effort people with CF have to make just to take a breath.
“I can see how arduous the burden of treatment is to try to stop lung function from declining. It highlighted to me just what a battle it is living with this condition that claims two young lives a week. I hope as many people as possible take part in an event in their area during CF Week to help to raise awareness and fundraise for research and support for CF.”
Mr McCallister achieved 88% on their spirometry test coming in 23rd place amongst their fellow MLAs.
Cystic Fibrosis is one of the UK’s most common inherited conditions, affecting over 9,000 babies, children and adults. CF is caused by a faulty gene that causes the lungs, digestive system and pancreas clogging them with a thick sticky mucus.
More information about Cystic Fibrosis Week, which runs from 29 April to 5 May and events going on can be found at www.cfweek.org.uk.